Children’s Tumor Foundation

childrensThe Children’s Tumor Foundation is a non-profit 501(c)(3) medical foundation, dedicated to improving the health and well being of individuals and families affected by the neurofibromatoses (NF). The mission of The Children’s Tumor Foundation is to:
  • Encourage and support research and the development of treatments and cures for neurofibromatosis types 1 and 2, schwannomatosis, and related disorders (hereafter collectively referred to as “NF”);
  • Support persons with NF, their families, and caregivers by providing thorough, accurate, current, and readily accessible information;
  • Assist in the development of clinical centers, best practices, and other patient support mechanisms (but not including direct medical care) to create better access to quality healthcare for affected individuals; and,
  • Expand public awareness of NF to promote earlier and accurate diagnoses by the medical community, increase the non-affected population’s understanding of the challenges facing people with NF, and encourage financial and other forms of support from public and private sources.
  Why did you become involved with the Children’s Tumor Foundation? As a professional triathele I’m conscious that I have some public exposure and to a certain point I can influence others. Having that privilege I want to use it in a positive way. Children are naturally a source of hope and future, for them to be affected by this awful scourge that is cancer and that claims so many lives, is something that no one can be indifferent. Therefore I’m hoping that I can create awareness attention to this cause and with that bring some kind of revenue that can help and find a better treatment or even just to improve these children’s life.” Quote from the ambassador interview with CTF. Read it entirely and know more about the Foundation at